Description: The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.
One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn't have to be that way. Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 28th. The National Organization for Rare D
The zebra is the official mascot for rare disease patients. Historically, medical professionals were told that when they “hear hoofbeats,” they should not expect to see a zebra. In other words, look for the more common answer, a horse. Now, we know that one in ten Americans is actually a zebra! It might not be obvious when you look at us, which is why we show our stripes to raise awareness. Wearing stripes can start a conversation that helps others learn about the prevalence and challenges of rare diseases.
Who do you Show Your Stripes for? We want to hear from you! Behind every face is an extraordinary story and sharing your experience, struggles, and triumphs can help impact change.